Antibody Round 3
Brady tolerated antibody running at full rate. He had minimal pain- seems they found the right amount of pain meds to get him through this. He ate a big breakfast & snacked a little throughout the day.
Brady ate breakfast! During the 1st two rounds he never ate once antibody started until we got home. One thing about this round that he hates is the GMCSF injections…. I don’t blame him- he gets so mad afterwards. Overall, it was a GREAT day. He fought through the Benadryl twice and only took a 45 min snooze late in the afternoon. He continued to eat which is great!! He was out of bed playing a few times & he had a visit from his Jimmy Fund nurse; he hasn’t seen her in over a month and had news to share with her…. he’s been wearing big boy pants! Then he wore them as a hat.
He did get his first fever around 8pm, but that didn’t hold him back.
He was full of energy & didn’t give in and go to sleep until about 9pm. We finally shut the lights off to try to get him to relax around 8:40- about 10 minutes later his nurse was in here & out of nowhere we hear a burp- then there was silence- then he yelled out “scuse me!” All we could do was laugh. It was so cute.
For me… it was a very long day & I was exhausted, but I’ll take it- it was great to see him handling this round so much better than the last two.
Another great day for Brady! His appetite continued, minimal pain and he wanted to stay awake & play all day. He played & talked with all the nurses. at one point he had the admin from 6E & another nurse in his room & he was sharing his lollipops with them & then wanted to see everyone’s tongues & said “ok, let’s see all our tongues” and he had his out & was trying to see his own. He was in a great mood! Auntie Tracey came to visit me- we had planned it before the week began & I figured it’d be a good chance for us to visit since Brady slept through the afternoon in the previous 2 rounds. I was wrong- he was awake when she arrive which was actually a nice surprise & they were able to visit before I was able to finally convince him to take a much needed nap.
Antibody infusion for this round finished around 8pm. Brady was a trooper the whole week. I came into this round expecting the worse & he surprised me. Seems to have surprised many of the nurses & doctors here too. After his injection, he played in the hallway with his shake n go cars with his nurse & the admin. He had so much fun!
Great to be home. Not only did Brady blow this round of antibody away, he made a lot of progress this week socially. He is usually very shy & when anyone would come in the room and talk to him previously, he would always say “no” or “mom”. I am sure a lot of it was when he just didn’t feel good. This week he was talking to everyone & would ask them to play with him. I am very proud of him. He was so proud of something he did or showing off his toys & he’d share the news with anyone that walked in the door.
We got home late afternoon & of course he wanted to ride tractors with Grampy.
Hopefully he will continue to feel good before we go back to start next round on the 9th.
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