Brady had his first pediatrician appointment today since before being diagnosed. It was so strange- everything was so simple and quick – obviously much different than all his visits in Boston. His new pediatrician is the last Dr we saw before we started this long battle against neuroblastoma. We had been to the pediatrician’s office & ER on several occasions in the 2-3 months prior to diagnosis with continued complaints of constipation, leg & neck pain. The day we saw this Dr on 7/27/12 was different, his regular pediatrician was out & the other one we had seen previously was also out, Brady was having difficulty walking & he was always in pain; we briefly explained the history & this Dr felt Brady’s belly and in a matter of minutes he had sent us to the ER with a request for an ultrasound. It was a day I will never forget. For months, no one could tell us or figure out what was wrong, but that day he saw Brady & he knew there was something more going on.
We have learned that neuroblastoma is very difficult to diagnose and that following Monday (7/30/12) when we walked into the Jimmy Fund Clinic for the very first time we were told all the symptoms Brady presented with were basically textbook. I guess what I am trying to say is no one “missed” the diagnosis- we are just very thankful that our paths crossed with this particular Dr that day. We will forever be grateful & pray we caught this early enough & Brady’s scans will remain clear.
There have been many NB families this week that have had scans & not received good news. There are also those that are losing or lost their battle. It has not been a very good week- we are praying for all our NB families. Please keep them all in your prayers. ❤️
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