We are heading into Boston today to tackle MIBG therapy over the next few days!  His “I’M A NEGU KID” shirt couldn’t have arrived at a better time.  Thank you to the Jessie Rees Foundation: Never Ever Give Up!

Seems like the treatment itself is going to be the easiest part.  Keeping him in bed and keeping our direct exposure to the radiation will be the tough part.  Brady doesn’t usually let me leave the room….so, we shall see.  They have “options” and I am sure he isn’t the first 3 year old to be difficult and attached.  The hardest part will be trying to make him understand he cannot have his blankets.  I was able to find replacements of his 2 favorite stuffed animals- so, we’re good there.

The big item to keep him busy… the iPad!!! MANY thanks to Tom & Karlene Lowkes who donated an old 1st generation iPad to Brady for his treatment. This is a HUGE relief!  We were able to set it up very close to his own iPad.  It should be a lifesaver.  We’ve also received several DVDs since our post last Wednesday.

Many thanks for the continued support, thoughts & prayers!! It means SO much.  We love you!

BRADY will NEGU!!!!

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