Stem Cell Transplant postponed MIBG here we come….
After a what felt like the longest 3 days, we now know we are home another week. The team has decided MIBG therapy is the next best step in Brady’s treatment prior to stem cell transplant. I was able to clarify there is not a limited amount of hours per day that we are allowed in his room; however, we must wear a monitor as there is a limited amount of radiation that we can be exposed to. Actual physical contact is limited & we can not get in the bed with him.
He will be admitted next Tuesday & he will receive the MIBG infusion on Wednesday then we are there for a few days basically waiting for the radiation level to come down. Typically, MIBG therapy is used for relapse neuroblastoma, but it is now being introduced as treatment prior to transplant if children still have more than 1 or 2 lesions after chemo. Transplant will now take place about 6 weeks after MIBG Therapy.
It’s going to be a rough couple of days emotionally, but if this is what the team feels is best for him then we will get through it. We have to. Brady has been through so much already & still has a long road ahead of him, but if he can remain strong then we need to remain strong for him.
Attached is a link to a YouTube video of the head of neuroblastoma, Dr. Shusterman. The video briefly explains the MIBG therapy & shows the room he will be in.
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